Can Portable EEGs Make Seizure Diagnosis More Accessible for Children in Columbia?

$7,000
Goal
This project is not live.
You can't donate to this project yet.
Draft
  • $0
    pledged
  • 0%
    funded
  • Private
    Not Launched

About This Project

Access to EEG testing is limited in underserved communities in Columbia, leaving many children with seizures undiagnosed. We are piloting a mobile phone–compatible EEG platform with AI support, to assess technical and logistical feasibility of implementation & to gather patient, caregiver, and clinician perspectives. By combining brief recording sessions, interviews, and questionnaires, this study will generate early evidence on how portable EEG can expand equitable access to seizure diagnosis.

Ask the Scientists

Join The Discussion

What is the context of this research?

Globally, ~80% of individuals with epilepsy live in low- and middle-income countries, where diagnostic and treatment gaps persist. Access to neurodiagnostic testing is limited in rural areas, where distance from hospitals and specialty centers delays diagnosis and care. Mobile EEG platforms, combined with tele-neurology, have emerged as promising solutions to improve access, adherence, and outcomes. Ceribell is an AI-powered, portable EEG headband and cloud platform that allows rapid seizure detection in emergency room settings. The BrainCapture (BC-1) is a full EEG device that can generate high-quality recordings even by inexperienced users. This project aims to evaluate clinician, patient, and caregiver perspectives on portable EEG, testing acceptability, and preliminary clinical performance in rural Columbia. Insights will inform strategies for integrating portable EEG into care pathways, particularly in underserved populations and regions with high seizure burden.

What is the significance of this project?

This will be the first study using cutting edge portable EEG systems with an AI-assisted diagnostic element in a rural setting in Columbia, where children in particular are faced with high epilepsy and seizure burden. This is in support of WHO's published plan to address global epilepsy gaps in care. The findings will be an important step toward validating a field-friendly, portable neurodiagnostic approach, helping reduce barriers to care in underserved and rural populations. By demonstrating usability for clinicians, patients, and caregivers, this project can inform strategies for implementing accessible, cost-effective EEG diagnostics and expand equitable access to neurological care where the burden of seizure disorders is highest. Importantly, we are starting with special attention to the perspectives that people have about what barriers this solution may help with, staying open-minded about challenges and gaps that may exist.

What are the goals of the project?

The primary goal of this project is to evaluate the feasibility and acceptability of the mobile EEG platform among clinicians, patients, and caregivers in Columbia, including underserved and rural settings. We aim to determine whether clinicians and families find the system usable and trustworthy, and whether brief patient recordings yield interpretable data comparable to standard EEGs. Secondary goals include assessing preliminary caregiver experience, including reduced travel burden and willingness to repeat testing, and gathering insights to inform larger studies on clinical agreement with hospital-based EEGs. Reads from the device may be compared to the current gold standard for patients with existing diagnoses. Overall, the project seeks to generate early evidence supporting portable, field-friendly neurodiagnostics to expand access and improve care for patients with seizure disorders.

Budget

Please wait...

This budget will allow our student-led team to rigorously ask the research questions proposed.

To answer the following detailed hypothesis...

"Use of a mobile EEG platform will be feasible and acceptable to clinicians, patients, and caregivers in Texas, as evidenced by: (a) ≥80% of clinicians and ≥80% of patients/caregivers rating overall acceptability ≥4 on a 5-point Likert scale; and (b) ≥85% successful EEG acquisitions (defined as ≥10 minutes of interpretable recordings)."

We aim to:

  • Recruit pediatric neurologists in target communities and patients/caregivers with prior EEG diagnostic experience.

  • Conduct semi-structured interviews; brief portable EEG sessions for consenting patients.

  • Compare portable readings with standard hospital EEGs.

  • Qualitative analysis via Dedoose; post-use surveys and device demonstrations.

  • Assess battery life, phone app use and ease-of-interpretation, data handling, portability, and implementation logistics.

Project Timeline

In the milestones below are example targets for dates, but we will respect the timeline of ethical review and feedback from our clinical mentors.

Over the course of the study, initial recruitment, pilot recordings, and interviews will be conducted, followed by preliminary analysis and reporting. Findings will generate early evidence supporting portable, field-friendly neurodiagnostics and inform strategies to expand access to care for patients with seizure disorders.

Sep 30, 2025

Planning, document preparation & protocol edits

Oct 31, 2025

IRB

Nov 10, 2025

Start interviews with clinicians

Dec 15, 2025

Assess readings with epileptologists

Dec 22, 2025

Visit to target sites to speak with patients, caregivers and perform reads in the field

Meet the Team

William McCarthy
William McCarthy
Medical Student

Affiliates

UTHealth Houston, MD Anderson
View Profile
Jon Beaubrun
Jon Beaubrun
Engineer
Megan Ngai
Megan Ngai
Catherine Zhang
Catherine Zhang
Nesha Rubin
Nesha Rubin
PhD Student

Affiliates

Institute of Biosciences & Technology Texas A&M University
View Profile

Team Bio

Health In Your Hands is composed of creatives, students of medicine, engineering, global health, biology, media, and anthropology. We envision a world where accessible, community-driven diagnostic and health solutions empower individuals and prevent disease through sustainable innovation. We aim to plant seeds of interdisciplinary collaborations, innovative technology, and education to grow scalable, effective, and accessible One Health solutions.

William McCarthy

Hi! I am a lifelong learner, medical student at UTHealth Houston McGovern Medical School, researcher, writer, and artist. I am passionate about the natural world and channel my curiosity through biomedical science, microscopy, and art. My past and current research spans neonatology, cancer neuroscience, environmental health, global healthcare innovation, and spatial epidemiology, with experience at Colorado University Anschutz Medical Campus and MD Anderson Cancer Center / UTHealth Science Center at Houston. I approach human health and illness with openness, creativity, and a commitment to interdisciplinary solutions.

Jon Beaubrun

Jon is a chemical engineer with experience working in the semiconductor industry as an engineer focused on technology transfer and high volume manufacturing of transistors. Jon also has experience with technology de-risk and scale-up in controlled environment agriculture working on projects ranging from vetting novel sensing technologies to scaling from R&D/pilot to commercial scale production.

Additional Information

  • Armand Larsen S, Klok L, Lehn-Schiøler W, Gatej R, Beniczky S. Low-cost portable EEG device for bridging the diagnostic gap in resource-limited areas. Epileptic Disord. 2024;26:694–700. https://doi.org/10.1002/epd2.20266

    Please follow the link below for more information about Ceribell headband:

    https://ceribell.com/


Project Backers

  • 0Backers
  • 0%Funded
  • $0Total Donations
  • $0Average Donation
Please wait...